Tuesday, September 1, 2009

ZZZZs are Calling

We are tired, all of us. That is why I am posting early in hopes that all of us will be getting some sleep soon. My mother has been here for a week and she is leaving tomorrow. We will miss her as she has been a big help. Brianna was up this morning around 5:30 then took a nap around 8:30 and at 10:45 I couldn't help but wake her up. After that she was quite lethargic and whiny. Her heart rate would go from 80 to 135, drop back down to 92 then up to 148 all in a matter of seconds. I learned later this afternoon that when the heart rate is going up and down like that it is very exhausting to the person it is happening to. Around 3:30 her heart rhythm got back on track and she was her happy-go-lucky self.

Thank you to Kristen and Madison; Darlene and Max for visiting and bringing lunch. Unfortunately Brianna wasn't in the mood to visit. Another thank you to Cassie for coming over and giving us a break this afternoon.

Tomorrow morning we have an appt. with Brianna's pulmonary doctor. It will be interesting to see what he has to say. Brianna has been on oxygen for a week now and appeared to have stabilized somewhat until today. Of course I will post later tomorrow.

Thank you to all the emails, facebook entries and blogsite entries. I wish I could write each one of you back but the time is just not there. I so appreciate the heart-warming thoughts and prayers.



  1. Oh I am so glad to hear Brianna got to feeling better! I was a little worried when we left today, but very happy you were able to go out for a little bit knowing she was her happy little self =) You are very very welcome for lunch!
    Praying and sending love always!
    The Hendricks Family

  2. Thanks for the updates, Brenda. Don't worry about all of us. You concentrate on Brianna and yourself.

  3. Reading your story tonight is heart-wrenching. I was very close to a family who had to go through some of these same steps before losing their daughter so it brings back many memories. I also have a daughter that has development delays due to having hydrocephalus as a baby and seizures. God has brought her so far but I can feel a bit of what you are feeling and my heart and prayers go out to you. I love the piece from Erma Bombeck!!! I can tell you are great parents and have great support. May God give you abundant strength during this time!!!! I know you are enjoying every minute with her and when God chooses to take her to His side you will have no regrets even though the pain will be there. God bless!!! "God will make this trial a blessing, though it brings me to my knees. Though my tears flow like a river, yet in Him there's sweet relief. There's no need to get discouraged, there's no need to talk defeat. God will make this trial a blessing, just be faithful, you will see."

  4. Praying for rest for you all and a good word tomorrow.

  5. Brenda, Jerry,

    I'm hoping you the best and a better near future with your daughter.
    I'm hoping for her a better heart shape and a stabilized situation.

    You are so strong, a model for everybody.
    Thank to keep us in touch with your reality.

    All the best,


  6. Hello Brenda,

    Your story is very moving, I really enjoyed reading about your daughter. I'm glad to hear that after all the ups and downs, her heart rate was back on track. I am impressed by your blog on children's health. I think you should have your voice heard by over 6 million monthly visitors who come to Wellsphere's website to seek information on a variety of health related topics. We would like to raise the awareness of children's health, and connect you and other people who are in similar situations. Through Wellsphere's HealthBlogger Network, you can engage with others to lend a helping hand for one another.
    For more information about joining, please visit http://www.wellsphere.com/health-blogger or email me at hua [at] wellsphere [dot] com.

    Hope to hear from you soon!
    Director of Blogger Networks