Saturday, September 5, 2009

What a Draining Day

Jerry and I are wiped out. It's been a very emotional day. We went to see Bri....she was so pretty. Resting peacefully wrapped in her grandmothers quilt and her bear-skin plush rug on top keeping her snuggly. Pretty Florida dress and matching bow. My sister Judy suggested getting Bri's hand and footprints on paper as a keepsake. Of course I took it a little further...and had Bri's footprint stamped on my forearm....Jerry followed suit. No, it's not permanent but it will stay for several days if we are careful.
Came home and wrote Bri's obituary, whew, it will be published tomorrow in both the Orlando Sentinel and the Northwest Daily News. Both newspapers can be read on-line.

Tonight we are going out to Cirque du Soleil. Some friends gave us the tickets. Jerry and I could just stay here at the house on the couch taking turns sighing......stress.....but we're not. We are leaving shortly to get out and get some fresh air.

Thank you Connie and Chuck for the Kahlua pound cake and red wine.....both were delicious. Church tomorrow. We are looking forward to meeting up with our friends and giving glory to God for our family. You are more than welcome to join us. 11:00 am Genesis Service, First Presbyterian Church Downtown Orlando, front row, baby!


  1. I am so sorry for your loss; I just found your blog through another T-18 family. I am so thankful that you had over 2 wonderful years to love and know your daughter but I can not begin to imagine the pain that your family is feeling right now. She was beatiful!! My Jordan passed away in June after 3 days but I'm also a pediatric PT and I LOVe the picture at the top of your blog! Its an incredible picture of your precious baby sitting up!
    You and your family are in my prayers during this difficult time!

  2. It is so hard for you right now but Brenda your strength and courage shines through and I am so glad you are celebrating Bri's life. I will be wearing colourful Tee for her memorial day for sure!

  3. I am sitting here in tears after reading your blog on your precious little girl. I heard about the news through Zane's blog and my heart breaks for you and your family. My son was thought to have T-18 but luckily he was okay. Now I am pregnant with my second and she is also thought to have it. We have tests later this month to see how she is doing. My son is now 22 months and I can't even imagine letting him go. It doesn't quite seem fair to me and you seem so much stronger than I ever could be. I am glad you can make peace with all of this and know that God is taking good care of her right now. I am so so so so SOOOO sorry you have to deal with this. I don't know you but please know I am saying a prayer for you and your family. Thank you for sharing your story and making us all fall in love with Bri. She seemed to be a true blessing from God that taught us all to appreciate life and each other so much more.

  4. Brenda,

    Though you have prepared us for this, I am still in shock today. I cannot stop thinking of you and your family. God bless you for all of the courage you have shown. Knowing Brianna through you has been a gift and a blessing. Thank you for sharing your beautiful daughter with all of us. I will never forget her. Ever.


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  6. Brenda,

    I am so sorry for your loss & was crying reading through your blog.
    Brianna will be fine as my baby angel Rayvin (T-18) will be there to accompany and comfort her. Let all the beautiful T-18 babies angel play happily in the garden of heaven.

    Take care.

    Love : Pauline Ting (Malaysia)

  7. My thoughts and prayers are with your family.

  8. Brenda, I am so sorry to read about Brianna's passing. Isabella and I met you and Brianna briefly in the parking lot over by APH about a month ago. (you noticed our van and we had a little chat) I'm mourning Brianna's passing but have joy knowing she is in the Father's presence now. I pray for your family and your hearts that are hurting. May you sense God's healing presence as you reflect on the wonderful privilege He gave you in caring for your sweet little girl for her brief time here on earth. God bless you.

  9. I came across your blog thru a friend....Thinking of you and your beautiful family during this difficult time. Brianna was such a special little girl,such a gift, and I hope that you will find comfort and peace in the wonderful times you shared with her. God Bless you.

  10. Praising God for the beauty and gift of your precious Brianna. My heart breaks for you and will continue to pray for you all as you get through these difficult days ahead.

    Thank you so much for sharing your amazing miracle with all of us. I know her celebration of life service will be beyond special. Looking forward to meeting her the other side of heaven. Please keep us posted on how you all are doing. God's speed.

  11. Hey Brenda,
    I feel extremely lucky to have had the chance to meet her so recently and to of held her for a short time. I feel like I met her, and you, for a reason that day...I am so thankful you stopped in. I will continue to pray for your family in this time. And, if there is ANYTHING that I, or New Hope for Kids can do...please don't hesitate to call us. My cell phone number is 321-377-4345...-Cory

  12. 4 days to try to find a way to say something without result.
    You're situation was so sad and you are so strong.
    Your fondation idea is so great.
    Take care,