It is with tremendous sadness that I let everyone know that Brianna is in the hospital again. Yesterday she turned blue again. Just started having problems getting enough oxygen, I immediately hooked her up to her pulse oximeter and her blood oxygen levels were at 61 (should be 100), got the oxygen going and even with that, her levels wouldn't increase. She was moaning and trying to breath, turning pale and blue. Jerry was home with me at the time, we continued with the oxygen hoping the episode would pass but after 8 to 10 minutes we called 911. When the paramedics arrived, they took one look at Bri, saw the blood oxygen level, and the oxygen and her little blue face and bolted us out the door into the ambulance on to the hospital. They were preparing to intubate her in the ambulance when her oxygen dropped again but thank you God, her levels came up.
We were in the ER for a while and then she was admitted. Today we have found out that her pulmonary hypertension is extremely severe. I have noticed in the last month that her heart has become larger due to having to work extra hard to push the oxygen into her lungs. The first indication of a problem was the bundle branch block that happened last week. We know there are meds for hypertension but the problem is she needs a cardiac catherization before the proper dosage of meds can be administered or they could be fatal. Last week her cardiologist told us he could not do the cathe. We are now meeting with a new cardiologist but the fear is that the procedure would be very high risk and she would not survive it, that is even if we could find a cardiologist who would agree to do it. Even if so and she survived it, how much time would the meds give her to live? Then we have to ask ourselves if we are being selfish in putting her through this? We want her here, we want her to stay with us. You can't imagine how hard this is.
We finally allowed ourselves to really look to the future, a teacher from the school would start coming to the house in the Fall, and when she turned 3 she would be going to school, we ordered her a wheelchair, I've been planning her Halloween costume. There are so many photos I still want to take, places we want to take her.
Please pray, pray, pray for just a little more time. Just 5 minutes more.....