We returned home Friday evening around 6 pm. Yesterday ended up being a very productive day. Usually we go to Florida Hospital (which we like) but the doctor who ordered the Ph Probe is associated with Arnold Palmer Hospital for Children so that is where we were for the last couple of days. It was good to see different doctors and to hear what they think is going on and what we should do. One doctor in particular, Dr. S was absolutely amazed to see Brianna. She is the oldest Trisomy 18 child he has ever seen. And what a show she put on for him. Goofy, silly, rolling around, sitting up, babbling, the whole 9 yards! He was mesmerized. We ended up doing another EKG and EEG, chest x-ray and a stomach emptying procedure (formula and a dye and put into her stomach through her G-tube and she laid under a scanner that recorded how long it took for her stomach to empty. She laid there an hour and a half, smiling, clapping and laughing at the many cartoon stickers on the scanner. She is so darn adorable.
We will get the results on Monday. We are still on the path of doing the Nissan Fundoplication but we also want to rule out other problems while she is in the hospital. As my husband says, it would be frustrating to do the Nissan only to find out it was something else causing the blue spells.
Here's a picture of Bri getting all wired up for an EEG. She was so patient.
After getting the wires connected, her head is wrapped to keep them in place. I HAD to add the bow.