Brianna is doing good. The oxygen has made a big difference; giving her comfort. She episodes continue from one extreme to another. Sometimes they are the super-high heart rate; blue spells and then other times, the extreme low heart rate. This morning at 3 am it was the extremely low heart rate. We have learned that it at those times she is experiencing a Bundle Branch Block (google it, easier to understand). Several hours later she is back to "normal".
Thank you again to everyone who is sending emails; texts; notes on Facebook and comments on this site. Although I don't respond to each one of you, your thoughts, prayers and kind words do not go unnoticed. Thank you from both Jerry and I.
My momma is here in town now. My sister Judy brought her. A super big thank you to her. Everyone knows in times of sadness and distress, it's always good to have your mom around.
Oh, I posted another blog below, thank you May.