Thursday, August 27, 2009

All is the moment.

We all had a good night last night. Brianna's pulse oximeter didn't alarm not one time...yippee!!! We actually heard her playing with the sweet seahorse light up toy that her friend Maddie brought over to her earlier in the evening. It's the kind of thing that wakes you up from sleeping but ever so lightly and makes you smile with delight because your sweet baby is enjoying life. Thank you Kristen and Maddie for making that possible : ) Hubby is in bed, Grandmother is in Bri's room watching over her and I am waiting for all to go to sleep so I can go to sleep. Thank you to everyone for the many thoughts, prayers and food!!!! I have never been in this position and it feels kinda ackward but at the same time, feels so good not to have to think about meal planning, shopping and cooking. I have new pics but too tired to upload them now. Tomorrow I will attempt that. God has been so good to us. As for a prayer request, pray for no pain for sweet Brianna.


  1. oh i am so all over that! My husband and I just carry you in our prayers all day and thoughts are consumed with you and bri! (p.s. yes, would love to be a link on your site!)

    makes my heart so happy to hear you are getting these memories AND peace in the moments! I wish my words here could express the joy i have of seeing her sweet sweet face. I DO see my cana in's blessing me all over the place! not even a "bittersweet" but full on joy! love it love it love it!

    i just want to cover you in this, may you find rest tonight, may our Bri find peace and rest and sweet sweet dreams, free from pain, free from fear, with a heart full of the knowledge that she is so loved.

    you guys are always in our thoughts.

  2. thankful for the good night Bri had. Great to hear you've got support around you right now.

  3. I an sooo happy that Bri had a good night. You are always in our toughts and prayers. We aren't that far away if you need anything.

    All our love
    Kim, Katie, Justin and David

  4. I wish that I lived closer so I could help you somehow. I so understand the difficulty of trying to balance everything... and most importantly, trying to push aside the things that don't urgently need to be done to allow you to enjoy quality time with your precious child.
    So glad to hear that Brianna is going much better today. I know how hard it is to watch a child struggle, I wish nothing but comfort for your sweet girl.

  5. We are so happy Brianna is enjoying her gift! Maddie and I both enjoyed spending some time with you and Brianna the other night and I got some great video I will send you =)
    Saying prayers sweet Bri has no pain tonight.

    Kristin and Maddie