FRIDAY, AUGUST 24, 2007 08:59 AM, EDT
Living a "Normal" Life.
We attempted to continue our life as normal. But anymore, what is normal? We are now waiting for Brianna to either reach four months of age or weigh 10 lbs. in order to have open-heart surgery to close those two holes in her heart. Going to any of Brianna's doctors can be so depressing. They keep reminding us (gently) about her condition. That it is not compatible with life. We are fully aware that having the heart surgery will not SAVE her life, it will only keep her here a little longer with us. Babies with this condition, if they live to be one year old, are considered long-term survivors. Try living with that on your mind just about every minute of every day. But we know our baby girl is one heck of a fighter. And we just get through every day by loving her.