Thank you to our Amazing God

MONDAY, JULY 28, 2008 08:56 PM, CDT
Hello everyone. The biggest thing I can say is that I wish each and every one of you could experience Brianna in the here and now. She is AMAZING. This child, once in her presence, you know without a doubt, there is a God. A magnificent God. My heart overflows with such gratitude that she is doing so well. So happy. Oh my goodness, the smiles and the giggle this child has just lifts me to a place that I have never been before. And to see her face when her daddy walks into the room. Oh, giant smiles for him. And her sister, oh....Brianna gives the big "O" smile showing all of her teeth for her sissy. There's no doubt she knows who we are. You can't imagine the joy this brings to us.
When she returned home from her last hospital stay we found that she had regressed in her learning. She no longer wanted to try and crawl, she only wanted to lay on her back. We have worked incessantly to bring her back and like a light switch, she's back on. Rolling, rolling, rolling, trying like the dickens to crawl and eat. This child wants food by mouth. The real kind. Her favorite? Green beans. Loves them!!!
Brianna's life has made such a mark in our lives. Ashley, our 16 year old daughter was in summer school this past month and when an assignment came up to write about your "hero". She chose Brianna. Not to keep you in suspense, but I have plans to make a video of that assignment and post it on you tube. In the meantime, Ashley, our other incredible 16 year old daughter is in New Orleans on a mission trip with our church's youth, rebuilding a church and housing for those who need it. May God bless her for she has traveled a long road to get to where she is now.
Please keep Ashley and her fellow youth members in your prayers as well.
Oh, by the way, I posted a new video on you tube. It is the original newscast of Brianna. They ended up cutting it due to the fires that were happening in Central Florida at the time.
Enjoy. Good night.

Keeping us on our Toes

WEDNESDAY, JULY 09, 2008 09:40 PM, CDT
It's been so nice to have Brianna home this past week but also a bit nerve-racking as well. She came home feeling pretty good but within a few days went down-hill quick. The congestion returned and her breathing became labored. We were a bit worried to say the least. On Sunday we were torn between taking her to the Emergency Room or waiting until Monday to see her pediatrician. Because she seemed to be holding her own, we waited until Monday and took her to the pediatrician only to find out he was on vacation. So we made a decision on our own and that was to withhold one of the prescriptions she was sent home with from the hospital. Our thought was that one of them was affecting her. We were correct. The steroid nose spray was causing (at least this is what we think) aggravation of her sinues and causing severe swelling and congestion. By Tuesday afternoon/evening, the Brianna we know, was coming back. Oh, I can't tell you the relief.
Check out her new photo. She was enjoying "reading" her book with her best friend, Chrissy.